How it is like to live with albinism (being albino)

Let me be honest with you. Almost a year ago I made a statement in the press saying that being different is a blessing. And I still believe in this statement but I also feel like theirs another side of the story.

What people think of albinism

I am very fortunate to have moved to an academic setting. People ar more educated on what albinism is and have a better understanding of it.

But this hasn’t always been the case. To me not understanding is the key to hatred. As a child and most of my high school years people thought albinism only affected cute animals. Like a rabbit or something..

The human variant doesn’t really seam to catch on as well, very little people know of it’s existence.

Albinism as a curs word

I guess this took me a long time to actually grasp and place. When I walk past the street people can stop and scream albino at me.

It took me a long time to actually put this behind me. Theirs no explanation to make it right, it’s just important to know that those people are just not educated about the topic.

Asking for help

With albinism comes bad eye sight. And I can’t go around it. Asking other people to help me with simple activities is maybe one of the hardest things I have had to do. Simple day to day activities are sometimes not possible.

Slowly I realized that every single thing I do on a day to day bases has a link with my eye sight. Things like ordering a coffee at starbucks can make me anxious because I can’t read the menu.

Asking my friend or the person next o me to help is one of the hardest but most necessary things I am learning.

For a long time I went by without telling anyone I had a problem because I felt like what they didn’t know wouldn’t hurt. Now as I have gotten older, I realized it hurts me more then anyone els.

Rejection is a hard pill to swallow

I am not going to lie to you and say that everyone is very accepting. The truth is not all people will accept the problems you have. This has happend to me a lot, especially with students in primary school but also with adults and even some of my past educators.

People who can’t accept that this is a part of who I am aren’t the right people to be around

People love you for who you are

After being rejected a lot it’s hard to see peoples pure intentions. I had a hard time accepting the fact that people other than my family love. And not everyone just wants something from me.

The most important thing

Even if it’s not easy to go around being different, living with it is the only way to move forward.

Just because I have albinism and have an emparment doesn’t make me any less of a human. Everyone has things that make them imperfect But this should never stop you to do what you want to do in life.


XO Lisa


  1. October 25, 2017 / 9:36 pm

    I need to to thank you for this excellent read!! I definitely enjoyed every bit of
    it. I have you bookmarked to look at new
    things you post…

  2. October 26, 2017 / 3:59 am

    You’re so awesome! I don’t believe I’ve truly read something like this before.
    So wonderful to discover another person with genuine thoughts on this subject matter.
    Seriously.. thanks for starting this up. This site is something that is needed on the internet, someone
    with a bit of originality!

  3. December 14, 2017 / 7:55 am

    Love this honest post, you write eloquently Lisa, so proud of you xo

Leave a Reply

Your email address will not be published. Required fields are marked *